One Kind Word Deserves Another

In the world of blogging, discussion and traffic let bloggers know that the time we spend sharing and helping others has value.

Bloggers love discussion in their comment section or email. We love referrals from others: links from other blogs and forums, Tweets, Facebook recommendations, LiveBinder listings...anywhere that brings traffic to our site.

Special needs bloggers tend to write because they want to help and support other families, teachers, and therapists paddling the same boat. There is just something extra-special about these good folks!

Knowing that traffic is a great way to encourage a blogger, will you join me in supporting some great bloggers by visiting their sites? These are the Top Ten Blogs that have referred the most visitors to Adapting Creatively. Some days it was the readers coming from these sites that encouraged me to keep posting.


These are some great sites by some talented and creative individuals. Some are parents, some are teachers, some are therapists. All deserve recognition. And you might just stumble across a new favorite!











(A quick little side note...there are a couple of lovely forums that directed lots of traffic and I would like to thank them as well. Many thanks to http://www.parent-2-parent.com/forums/forum.php and http://community.babycenter.com/! If you are looking to get involved in a forum, either of these are great resources!)

Thanks for taking a few minutes to check out one or two—or all ten!—of these inspiring blogs!

I hope you are enjoying a relaxing, healthy summer,
Rose-Marie

Clip-On Personal Speakers for MP3/iPods

Look at these wonderful clip-on speakers!



They were an accidental discovery at our local dollar store. Hopefully your dollar store carries them too; it's worth a look.

They meet our headphone needs perfectly!

The speakers can clip to fabric near my daughter's neck, on a collar or the sling seat of her jog stroller. They can also click together and hang around her neck.

Clip to a collar or the sling seat back of a jog stroller...

Or wear them clipped together around your neck
(we don't opt for this style much because my daughter's
fingers tend to get tangled in the cord).
Here’s why we love them...

1) Head size doesn’t matter. Few headphones are sized small enough to fit my daughter’s dainty head. 

2) They don’t fall off. Things that fall off are things she is unable to put back on her head. 

3)  They don’t force the sound right into her ear, which makes them much less fatiguing than headphones or ear buds. 

4) They allow her to have access to the sounds around her, like when my husband calls back to her in the van, “Look, there’s a UFO out your window!” Okay, more likely, he’ll say something like “Look at the little calves out your window” or “There’s a cool antique car coming down the road.” But if he did see a UFO, she wouldn’t miss hearing about it! 

5) They are completely portable and leave me hands-free to assist with walking. 

6) They don’t mess up her hair. This matters when you are a teenager. 

They don’t have fabulous high-fidelity sound, but what do you expect for a buck?  

At just a dollar, I wouldn’t be surprised if they don’t last long.  

My daughter loves hers. We bought two pairs (after all, they were cheap!), but I’d like to go back and pick up a whole 'nother handful.


Walmart.com used to have an iPod accessory kit  that included these speakers. Maybe they'll get it back in stock?

In searching for a higher quality product of a similar design, I stumbled across one website which produces only this style of speaker, but read reviews from runners/cyclists that they had lousy customer service. Nix that.

Another company carries an interesting looking design that clips at the shoulder with magnets. These might be an interesting possibility for some kids. Since my daughter has a Vagal Nerve Stimulator, we steer clear of magnets on principle.

The clip-on idea is so perfect. Bose? Bose, are you listening???

Have you found any creative headphone solutions for your child? We'd all love to hear about it! Please let us know in the comments box below. Thanks!

Grief from a New Angle

Grief is a slippery creature. About the time you think you have it tamed, it shows you a new side of itself.


When my daughter received her diagnosis of Rett syndrome nearly 14 years ago, I grieved. I grieved for what she would never have. I grieved for the “normal” experiences I had anticipated in raising her.

Through much wrestling and praying and struggling, I worked through my own grief. It took several years.

It isn’t that I actually like Rett syndrome, and would never wish it on the vilest enemy, but I have come to accept both it and our new normal. What began seeming like a curse has brought us tremendous blessing.

(Once in a l-o-n-g while though, I must admit, I do have one of those “I hate Rett syndrome” tantrums when no one is looking).

This past week, however, brought a new perspective to grief.

Friday, grief hit my daughter.

And I’m not sure how to handle that.

She was sobbing when I went into her bedroom to get her up for the day. It wasn’t a cry of physical pain. It was tears-streaming, pouty-lipped, breath-catching, my-heart-is-breaking sobs. She seldom cries like that.

I did the best I could using words on a white board and yes/no questions to find out what was bothering her, and she quickly, deliberately answered my questions with her eyes. It boiled down to her sadness and frustration over all the things Rett syndrome has taken away.

This was a very complicated discussion for me, because I didn’t want to plant unhappy ideas that didn’t already exist, giving her even more to be upset about. But we muddled our way through and she was heroic in her strength to respond and press ahead.

I am so proud of that girl!

Of course, it was all I could do to fight back tears of my own, I felt so badly for her. In the end, I gave in and cried right along with her.

We shared a good cry, a long snuggle, some soul-baring prayer, and I let her stay home from school so we could have a mother-daughter day. If she needed to talk some more, we would have that luxury. She was probably too distraught to have had a productive day of learning at school anyway.

She wanted to curl up on the couch together and watch “Ugly Betty” reruns. It was a good distraction and the day ended much more cheerfully than it began. She hasn’t seemed grieved  since.

We all need a chance to vent our sadness and frustrations sometimes. I feel so blessed to be able to give her that opportunity.

Yet it does leave me with some questions.

Before, in processing my grief, it was my own grief. I owned it. It was a selfish, look-how-this-syndrome-twisted-our-lives grief. Sure, I felt sad over the losses our daughter had suffered and the experiences she would never enjoy. But even that was my grief over her missing out.

This experience awakened grief in a new way.

I got to see what it is for her to ache over her own losses. It had nothing to do with me at all.

Now what?

Is it possible to work through what I do not own?

Unfortunately, no.

This is grief I cannot process for her; it’s something she has to process herself. Yet she has no means to express words, no way to talk about the things bothering her most.
The things I did to work through grief--talking with my husband and family and friends and eventually a counselor, writing out my unlovely thoughts, even shouting at God (it wasn't pretty, sorry)--are not options for her.

Somehow, she is going to have to work through this on her own.
Not that she's completely on her own; the Lord is with her. But still, this is her own grief to process through.
So tell me...

How do I help her?

The helplessness is familiar; my husband and I have been helpless in “kissing the boo-boo” of her syndrome and “making it go away.” Only after we surrender its suffocating weight can it be lifted so we can breathe again.

Truly, I am at a loss. This is uncharted territory for me.

Have any of you helped your kids process their grief when it hit them? How did you do that?

Do you know of any recommended reading? I’d appreciate the name of a helpful book right about now...

AAC Evaluations: Resources to Help You Get Yours Right

There has been much discussion – and grave concern – lately on several online parent lists about AAC evaluations for non-verbal children. Families are asking where they can learn more about the process to make sure evaluations are conducted appropriately.

After all, the stakes are enormous.

Communication is fundamental to the very core of who we are.
Sometimes this basic concept gets buried under all the data collection that is mandated from speech therapists. And sometimes families forget that communication is more than just simplifying life for the caregiver.
An AAC evaluation is a subset of a larger Assistive Technology (AT) evaluation. Because communication is such a critical component impacting every aspect of life and learning, AAC evaluations often become an entity all their own. The rest of the child’s assistive technology needs cannot be ignored, but AAC decisions are so huge, and often so costly, that they are given special separate emphasis.
AAC evaluations need to look at the whole child, not just the tools of expression. Notice I said “tools,” plural, with an S. Notice I also did not say “only a high-tech device.”

There is a trend right now to assume that a single high-tech tool fits all. Don’t get me wrong; this iTool is great and may be able to benefit many, many kids...but that does not mean it is a great tool for every kid.

Families, just because a sleek, new, high-tech iDevice is “cool” does not make it the right fit for every child.

Schools, just because this iDevice is relatively inexpensive does not mean that is the right device for every child either.

Just because a school is comfortable with a specific method (PECS  or PODD or name-your-favorite) or device (one brand, one language access software) does not make it the right fit for every  child.

An AAC evaluation determines the needs of a specific child in the specific environments where he interacts and, from that, matches him with the tool(s) that best meet(s) those needs. Well, that is the method of an AAC evaluation done correctly.

AACTechConnect hosts a list of outstanding resources for AAC evaluations available on the Web. I want to highlight three free resources that are essentials for families. They are also essentials for speech therapists and AT teams...lest we forget the fundamentals of our service.

1. The SETTframework drives home the concept that we look first at the whole Student and their Environment as we consider the Tools that enable them to meet the Tasks expected of them. The rationale for the SETT framework and SETT forms are available through this page. The SETT framework directly addresses some of the problems I mentioned earlier about jumping to conclusions about the benefit of a one-size-fits-all tool.

2.  Wisconsin Assistive Technology Initiative’s Assessing Student Needs for AssistiveTechnology was updated in 2009. At 525 pages, you may not want to read the entire document, although it is excellent! Two outstanding and relevant chapters, both packed with rationale and many useful forms, are Chapter 1 (Assistive Technology Assessment) and Chapter 3 (Assistive Technology for Communication). This is a fantastic resource you don't want to miss!

3. The University ofWashington's site is different from the others in that it doesn’t offer forms or checklists. What it offers is a good discussion on the different levels of communication and ways to help children and adults succeed at each level and progress to the next. It also provides an excellent “crash course” in the basic features of AAC devices that need to be considered. This helps clarify some of the technical jargon in the forms you may find elsewhere.

If you have an AT or AAC evaluation in your near future, take a look at all three resources.

Consider filling out some of these forms yourself based on your observations of your child interacting at home. Share your observations with the school team.

Your home is an environment where your child must be able to interact. Your observations of the needs she has there and how a trial device meets those needs should be considered in an AAC evaluation.

The better we understand the whole child, the better we will be able to match the tools to meet her communication needs. May every child have a way to express him or herself.


Hands-free Card Holder

Last month’s CD-disk card holder tutorial was so wildly popular that I figured folks might find today’s hands-free card holder tutorial to be useful as well.

After all, some kids lack the motor skills to hold cards at all, yet they would still enjoy playing card games with family and friends.
Just like the first, this card holder is quick to make and very inexpensive.
It isn’t limited just to playing cards, either. It can be used to hold picture symbol cards for non-verbal communicators to choose with eye gaze. Feel free to make it longer or shorter to meet your needs.
For playing cards or communication cards, this holder
is quick and very inexpensive to make.

All you need is a pool noodle (our dollar store carries them for a buck; each 4-foot noodle makes 6 card holders) and a serrated knife. You can use an electric carving knife (an ideal device for cutting foam and the only reason I have one) or a serrated bread knife. Since most people have access to a low-tech bread knife, that’s what we’ll use in this tutorial.

You simply need an inexpensive pool noodle
and a serrated bread knife.

Measure 15-16” from one end. Cut down through the foam using your serrated knife.
Cut straight down as though you were slicing a loaf of bread.
15 - 16" is a good length, but feel free to make yours longer or shorter.

Now slice lengthwise through the center of the piece. Try to keep the slice as straight as you can. Also try to stay in the middle so both halves are equal.
Slice down through the center to make two halves.
Set the slice, flat side down, on a table. At the peak of the arch, use your knife to cut a slot 1 /4 -1/2” deep the full length. It might help to draw a straight line with a Sharpie marker, both for you to follow with the knife and for your child to see the slot.
Drag your serrated knife along the top of each half,
allowing the blade to cut only 1/4 - 1/2" deep to
create a slot.

To use the card holder, simply slide the cards into the slot.

Rest the holder, flat side down, on a table.

There you go! Easy, inexpensive, and hands-free!
If you like what you see on Adapting Creatively, sign up to follow. You’ll be part of a growing group of parents and educators working together to meet the needs of our kids with disabilities in creative ways.

Temporary Blogger issues

To all those kind folks who left comments over the past few days, I extend my sincere apologies. For whatever reason, Blogger is not allowing me to reply.

Your comments are very valuable to me as they help me know what topics people are interested in.

I will try to get this issue resolved as soon as possible. In the meantime, please know that I appreciate your comments and try to respond.

Hopefully Blogger will get the problem cleared up soon. Thanks for your patience!

--Rose-Marie

* * * * * * * UPDATE June 5, 2011* * * * * * *

If anyone else is having this problem, one suggestion on the Blogger help forum was to untick the "remember" me box at sign in. I gave it a try and this seems to have solved the issue. So simple! So UNintuituve...

Scanning in PowerPoint: Alternative Access

You’ve made some cool activities in PowerPoint. Now how will kids without the ability to use a mouse or touch screen use your activity? Switch scanning can be an answer.

 PowerPoint can be controlled by single switches and timings or with two switches, independent of timing.

Let’s take a minute to get everyone up to speed on switch scanning. If you are already comfortable with the process of scanning, feel free to jump to the picture below and we’ll dig right in with how to use scanning within PowerPoint.

For those of you new to switch scanning on the computer, you can’t simply plug a switch into your laptop and hit away. It is necessary to have some sort of interface between the switch and computer. The interface inputs a keystroke or a combination of keystrokes when the user presses the switch. You can read up on switch interfaces here at Better Living Through Technology. 

There are two main ways of scanning with switches.

Automatic scanning with a single switch.  The selectable items automatically highlight for a set amount of time, cycling through the items in a certain order. The user hits the switch when their desired item is highlighted.  

A benefit to this is that only one switch is needed. It also minimizes the need to hit switches, as the scan happens automatically.  

The down side is that the person has to be able to time their hits. Not all people with motor issues are able to carry out movements at the precise moment they want. It’s easy to hit too soon or too late and miss the intended item. Rats. 

Step-scanning with two switches.   This assigns one switch the function of moving the highlight to the next item (“stepping”) and gives the second switch the function of choosing the highlighted item.

This manual control over the scanning speed is helpful for people who do not have the ability to time their hits precisely.

However, it can require many hits to get through all the items in the scan cycle. It calls for coordination of several movements. It also requires the ability to activate two switches, which means finding two sites on the body capable of activating switches or the ability to move off one switch and onto another. 

There you go—a tidy primer on switch scanning.


Controlling the computer with a Jelly Bean switch (plugged
into an IntelliKeys port, offscreen)

I won’t kid you that PowerPoint makes designing activities to be scanned a quick process. Actually, it’s pretty labor intensive. It’s not something I’d recommend using as the main software for creating switch-scanning activities unless it’s all you have available . 

However, it is a good option if you are evaluating switch-scanning as a possible access method for a student. It lets them try out the concept before sinking money into an expensive piece of adaptive software. That’s a good feature! 

It also allows students who need access through switches to use some of the same activities as their classmates. This can count big for a motivating a student who wants to fit in. 

What kinds of activities work well with scanning? Actually, anything that responds with a click or touch! Just avoid drag-and-drop activities, because translating them to scanning is more work than we’re going to tackle.

These sample activities will give you ideas:

As with all things, the more you practice, the faster you get. If PowerPoint is your only option for scanning, take heart. You’ll be able to whip out scanning activities before long with enough practice.  

There are a couple ways to create scanning activities, but we’re only going to cover one here. It’s the simplest, most dependable, and provides the most visual support to students. It takes a little longer, but practice will minimize that.


Here’s how.

1) Create your page. Make it exactly how you want to it look, with objects sized and located just how you want them, because changes later will take extra time.
You can insert action AND animation objects, depending on how you want the objects to perform. If you need a refresher on the differences, check back here.

[Side note for those of you who attended the NWACS PowerPoint workshop in Seattle: I am so excited to announce that objects include ones with action settings AND animations! After thinking we were limited to just action settings (basically hyperlinking to a new page or a sound), I discovered how we can activate animations too...opening a whole new world of possibility!! Wahoo! Keep reading to find out how...].

2) Create duplicates of your page. Make as many exact copies as there are objects you want to include in the scan cycle.

3) Add scanning highlights to one object per page. Leave the other objects untouched. You don’t want to touch them, because they will create a visual distraction if they vary from one page to the next.
Visual highlights could be a wide, bright border, a button of a different color, an auditory cue.
For borders, use a 6-point (or thicker) bright border around the picture. For button colors, I simply swap out the fill color and outline color of an existing button. Kids with visual impairments may benefit by having the button enlarged as well.
For an auditory cue, assign the sound file to the page transition. See the lesson on transitions.
Assign the action or animation you want the object to perform if it is selected. Leave the other objects untouched.
IMPORTANT: Animation objects must be set to activate with triggers when clicked. In the drop-down list, select the object itself as its own trigger.  You can review the process in this lesson.
The order of the scan cycle will follow the order of your pages. On page one, highlight the first object in the cycle. On page two, highlight the second; page three, highlight the third...until all the items/pages in the cycle have been highlighted.
4) For automatic (timed) scanning with a single switch, time all the pages to transition at the desired interval. For step-scanning with two switches, leave the slides to advance on click.

5) In the Slide Show settings, set the show to run in presenter mode. Also, set the show to loop until hit ESC. Looping allows the student to start over with the scan sequence in case they missed their target (this happens frequently, especially with automatic timing).


From the Slide Show tab (1), check Setup Slide Show (2).
This brings up a popup where you check that the show will
run in Presenter mode (3) and that it will Loop until hit ESC (4).
 6) Save your work.

7) Test your activity. Move forward through the pages with the SPACE bar. Select the action or animation on a page with TAB + ENTER. Automatic scans only require the TAB + ENTER command.

8) Program your switch interface. Use SPACE as the command to move forward and TAB + ENTER to select. If you are using an IntelliKeys, you need to make these changes to the appropriate key or switch port. You can also download a PowerPoint control Intellikeys overlay

Sensory Software offers a free switch control program useable with PowerPoint called SwitchDriver.

Once you feel comfortable making scanning activities, you may want to develop ones that use multiple scanning opportunities (like the bee quiz sample, which cycles through 3 question and response sets). Multiple loops are made by setting up custom shows within your activity.  This allows you to set up and navigate multiple loops within one show, so you can offer a row of questions or even (if you are very brave!) branching activities where the child determines the direction they will take.
This sounds harder than it is, so please don’t be intimidated. Mostly it’s just time consuming.
·        Create the groups of slides you will need as explained above.
·        Click the Custom Slide Show Button in the Slide Show ribbon and then click on the Custom Shows dialog.  
·        In the dialog box, click New and assign a memorable name to your loop.
·        Select all the slides that belong in one loop from the list on the right and then click “add.” They should now be listed in the left box. Click “OK.”
·        Repeat for each of the other looped sequences in your activity.
·        Now link the loops together so they make sense. For a linear activity, such as a quiz where the student answers one question following another, you will simply link the Custom Shows in order.
For example, in a quiz you’ll want to make a correct response lead to a new question. On the object that provides the correct answer, assign the object an action (note: this must be an ACTIONABLE object—see actions lesson). When the Action Dialog Box pops up, set the Hyperlink to go to Custom Shows and choose the one that is listed in the pop-up box that appears.
In a branching activity, such as a dynamic AAC page or a Choose Your Own Adventure style story, the Custom Show relates to the specific choice that has been selected. For example, if a student can scan between the choice of activity categories such as books, crafts, movies or outdoors, each of these choices would lead to a Custom Show with further choices specific to that category.
If you are adapting an activity you made earlier, the process is much the same. Copy an existing page but remove all the actions and animations. Now copy it again, as many times as you have selectable objects. Add the actions and animations back in, one object per page, for as many pages as you need. The steps above all apply as if you’d started from scratch.


So you see, creating scanning activities is indeed a lot of repetitious work. It takes time. But it is doable. The whole idea of a mainstream program being made accessible to kids with alternate access needs is pretty exciting, don’t you think? 

Please let us know if you make any switch scanning  activities! Or if you have questions, feel free to share those too.